What Is Endometriosis?
Endometriosis is a chronic condition where tissue similar to the uterine lining grows outside the uterus. It affects approximately 10% of women of reproductive age and is a leading cause of chronic pelvic pain. Diagnosis often takes years, and the condition can significantly impact quality of life.1
Symptoms2
Pain Symptoms
- Painful periods (dysmenorrhea)
- Chronic pelvic pain
- Pain during or after sex
- Painful bowel movements
- Painful urination during periods
- Lower back pain
Other Symptoms
- Heavy periods
- Infertility
- Fatigue
- Bloating ("endo belly")
- Nausea
- Bowel or bladder symptoms
Diagnosis Challenges
- Average 7-10 years to diagnosis
- Often dismissed as "normal" pain
- Symptoms vary widely
- Definitive diagnosis requires surgery
- Imaging may not show lesions
Diagnostic Process3
- Detailed history and exam
- Pelvic ultrasound
- MRI in some cases
- Laparoscopy (gold standard)
- Trial of treatment sometimes used
Treatment Options
Pain Management
- NSAIDs
- Heat therapy
- Physical therapy
- Nerve blocks in some cases
Hormonal Treatments
- Birth control pills (continuous)
- Progestins
- GnRH agonists
- GnRH antagonists (newer)
- Aromatase inhibitors
Surgery
- Laparoscopic excision (preferred)
- Ablation of lesions
- Hysterectomy (last resort)
- Excision by specialist often best
Comprehensive Care
- Multidisciplinary approach helpful
- Pelvic floor physical therapy
- Mental health support
- Dietary modifications (some benefit)
- Complementary therapies
Living with Endometriosis
- Track symptoms and cycles
- Find a knowledgeable provider
- Advocate for yourself
- Connect with support groups
- Manage stress
- Communicate with partners
References
- Zondervan KT, Becker CM, Missmer SA. Endometriosis. N Engl J Med. 2020;382(13):1244-1256.
- Agarwal SK, Chapron C, Giudice LC, et al. Clinical diagnosis of endometriosis: a call to action. Am J Obstet Gynecol. 2019;220(4):354.e1-354.e12.
- Giudice LC. Clinical practice: endometriosis. N Engl J Med. 2010;362(25):2389-2398.